Your Name:
Your Phone #:
Your Email Address:
Name of individual in the family
affected by Fanconi anemia(FA):
Your relationship to that individual:
self
mother
father
sibling
other
The following questions pertain to the individual with FA:
Is the individual still living?
Yes
No
Date of death:
Bone Marrow Transplant (BMT) status:
Never received a transplant
Has been transplanted
Year of BMT:
Age at BMT:
Has the individual been hospitalized or undergone surgery in the last year?
Yes
No
If so, please provide details (dates, causes of hospitalization, types of surgery):
Has the individual had recent blood counts?
Yes
No
If so, please list the dates and locations:
Date of the individual's last bone marrow aspirate:
Has the individual had any genetic testing in the last year?
Yes
No
If so, please list the dates and locations:
Have there been any significant medical changes recently for the individual?
Yes
No
If so, please provide details:
Would you like our study coordinator to contact you in the near future?
Yes
No
If yes, do you prefer to be contacted by phone or email?
Phone
Email
If by phone, best time of day to contact you?